NKH Conference - Boston Children's Hospital

October 2016     *NKH Crusaders*

Amazing Families from all over the world

Amazing Children

OCTOBER 2016

Smiles for Miles Cookbook

Representatives receiving SWINGS

LEARNING EXPRESS ALTOONA SCHOOL DISTRICT

Smiles for Miles

Everyday is an Adventure

"Miles, his buddy Oscar

& their friend Bumble Bee"

Available: CreateSpace Publishing

https://www.createspace.com/5117625

ALSO AVAILABLE on AMAZON & AMAZON KINDLE              Enter book title in the SEARCH


SMILES FOR MILES

THANK YOU TO WTAJ NEWS AND WJAC NEWS

 "HELPING US RAISE AWARENESS"

Dr. Mark Libenson

Senior Associate in Neurology

Boston Children's

ALWAYS SMILE

Smiles for Miles

Everyday is an Adventure

"A FUN Day on the River"

Available: CreateSpace Publishing

https://www.createspace.com/5291648

ALSO AVAILABLE on AMAZON & AMAZON KINDLE 

Enter book title in the SEARCH


Copyright © Penny Brunner. All rights reserved.

Smiles for Miles EVENTS

Smiles for Miles is a donor to The Humming Bird Program at Penn State Hershey Children's Hospital

Sharyn Lincoln

Genetics Boston Children's

Fertility & Future Pregnancies

Honored to have dinner with Kasturi Haldar, PhD

Center for Rare and Neglected Diseases

University of Notre Dame.

& Dorrie & Eric Carter from Rhode Island

AMAZING DAY...

THANK YOU SO MUCH TO EVERYONE

THAT MADE THIS EVENT POSSIBLE...

ESPECIALLY DELGROSSO'S AMUSEMENT PARK

Smiles for Miles

"International Cookbook"

Cost: $10 each

+ $2. Shipping cost

within the USA

(Total $12 per book)


$10.+ $9. Shipping

out of USA.

(Total $19.per book )  Please enter TOTAL.



ALWAYS BELIEVE in M I rac L E S!


THANK YOU TO

KRISTIN ZABRISKIE ARCHIBALD

NKH CRUSADERS

FOR ALL THEY DO TO

RAISE AWARENESS OF

NKH NONKETOTIC HYPERGLYCINEMIA

THE VERY DISEASE OUR GRANDSON MILES DANIEL BRUNNER BATTLES.

PLEASE VISIT

www.nkhcrusaders.com

Johan L. Van Hove, PhD

Professor of Pediatrics

School of Medicine University of Colorado

Dr. Olaf Bodamer

Associate Chief of Genetics

Boston Children's

Meeting with

Dr. Debra Byler,

Pediatric Neurologist,

Penn State Hershey Children's Hospital

THANK YOU SO MUCH TO THE WONDERFUL MUSICIANS 

 Rick Wertz, Will Jones

& Friends   

THEY MADE THIS DAY POSSIBLE !!

HELP  US  to  HELP  OTHERS  !

At the request of Penny Brunner, Founder Smiles for Miles,

Pa. Rep. Thomas Murt proposed House Resolution #822

Designating MAY 2ND NKH AWARENESS DAY IN PENNSYLVANIA

          Smiles for Miles

Charitable Foundation 

RAISING AWARENESS OF RARE PEDIATRIC GENETIC DISEASES

& CORTICAL VISUAL BLINDNESS

Member Blair County Health & Welfare Council

Volunteer Local Interagency Community Council Appalachian Intermediate IU8

(Serving: Bedford, Blair, Cambria & Somerset Counties)

Member Centre County Council of the Human Services

Volunteer Local Interagency Community Council Central Intermediate IU10

(Serving Centre, Clearfield & Clinton Counties)

Smiles for Miles has been instrumental in working with PA REP. MARCY TOPEL 

in writing legislation to establish a "RARE DISEASE ADVISORY COUNCIL"

"HB239" this would impact the entire RARE Disease community of Pennsylvania

Voted into Law July 7, 2017